FiBroMyalGia?
How do you manage a life with this "syndrome"? I mean with the pain/dizziness/nausea/meds, how do you have a life? Work? School? Play? This is every day. It doesn't go away or even ease up enough to do anything but lay in bed. Any suggestions? Just a month into it and am wondering how to live with it! NOT suicidal but seriously don't know how I'm supposed to have any kind of productive life...
Public Comments
1. My mother in law has this problem and there isn't anything much that you can do about it. Just excercise may help or join a support group. Just find your own way of dealing with it because it doesn't look like anyone out there is going to find anything that can help with the pain. Good luck with it.
2. I have had this for years. My doctor has me on 24mg amptripiline at night time to help me sleep and calm the sore muscle fibres. This does help immensely. I also have to take 3 Tylenol Arthritis @ bedtime which I began taking about 3months ago. The pain in my body from just turning over in bed was waking me up each night. Getting plenty of rest is a big one and not over exerting yourself helps. Exercise is important and makes you feel better. Sitting or lying down for to long causes you to become stiff and sore. Your daily diet should consume lots of protein.When your stressed or worried about things, this makes things worse. I also have experienced that when its damp and cold outside, your symptoms will flare up. Myself I feel quite normal most days but every once in awhile I'll have a "crash day"so I will lye down and sleep if possible. Having a great body massage also helps when your sore or have a headache from upper back muscles tightening. Don't let this slow you down, think positive and be somewhat active everyday. Hope this gives you some insight on the subject, I do work some long hrs. which gives you self worth and a positive outlook. Cocoa
3. I've had a chronic pain syndrome for 8 years now. It was very difficult the first year. I was depressed. I had to give up my job, so I had no money, the pain management doctor had me trying all different kinds of medication that were making me sick. I didn't know how to handle it. So I taught myself how to crochet. I must have made my granddaughters 500 sweaters once I got the hang of it, but let me tell you, it took my mind off me and it basically saved my life. I don't even crochet anymore now. You'll find a way to live with it. It takes time. Its kind of like a whole new life. I've had suspicions that I have fibro too, can you tell me how it started with you, and is it constant, everyday pain? I'd appreciate it. Take care of yourself and you can email me anytime if you want to talk.
4. Here's an intersting website:
http://www.ctds.info/fibromyalgia-diet.html
What we eat plays a VERY important part of how we feel. This person gives some intereseting advice on what s/he ate to improve the Fibromyalgia. None of this IMHO appears to be harmful. Why not give it a try? No matter what your budget allows, it certainly can allow some if not all of the recommendations. You might want to try this.
You CAN have a productive life -- you just need to tackle your disease one day at a time. I hope that in doing so, you will find life more enjoyable and find that your health improves as well.
You can also see if there are any Yahoo Groups dealing with Fibromyalgia that you would like to join.
Best of luck AND life to you.